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OCD - exposure therapy, CBT and experiences

Citizen Insane

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#1
Hey all, I made this thread for special reasons. One of them is @bobbob , :) - I had great success with exposure therapy years ago. It was only for about 9 sessions and it changed my life for the better. Making this thread, writing all this places things in a different perspective for me, looking back to 6 years ago and where I was then. I did this training/therapy in the Netherlands - so this is all translated from Dutch.

[I hope this is helpful to people who - for example - are interested in exposure therapy, but don’t know what it really looks like.]


What I was told is that: It’s only about 4 pages of text (!) - they did this on purpose - the mental professionals. I’m sure there’s like 300 page books out there on OCD, but there are reasons these 4 pages are super effective. Especially when guided by a mental health professional.

[Feel free to add to this, if you have any questions about anything or just want to talk & chat about OCD, anxiety and more.]

The exercises below are based on my own experience with exposure therapy. You’ll be perhaps surprised to see that there’s only one “compulsive action, behavior” below here. But that action on its own was at the time the most negatively impactful thing in my life for years. It's possible to have many compulsive actions.

Compulsive actions:

1. Looking up information [on the internet] about World War 2.
2.
3.
4.
5.
6.
7.
8.
9.
10.

Possible negative expectations to examine:

1. When I think about World War 2, I will become psychotic.
2. When I think about World War 2, then I can not function in life - [work, study, cook dinner etc.]
3.
4.
5.
6.
7.
8.
9.
10.

Exposure exercises

1. Thinking about World War 2 and not looking up information [on the internet].
2. Thinking about World War 2 and then reading a book [at the same time].
3.
4.
5.
6.
7.
8.
9.
10.

[To give context to what you are reading here and what these exercises are meant to combat:]
[From an older thread years ago]


(((Hey all,

This will be a thread about what I have been going through for a while now, close to a year. OCD and obsessive thinking are the main subjects. I felt the need to write this off.

It was only recently that I shared this experience with another member here. The OCD I have and because of the way it expresses itself, it is an impossible beast for me to tame. Not to use the word control in this situation, taming it is, since there is no 100% cure – I have to say that often I feel that I am being controlled. Also it tends to behave like a delusion, such as the one experienced during a psychosis.

Example: While I was reading a book – “Perdido Street Station” – I experienced obsessive thoughts. How they express themselves is like this: I was “forced” to follow letters on the page I was reading, with my eyes until it spelled out a word. That word was Auschwitz. I hadn't been able to find the letter Z on that page, but some others letters were easier to find, like the A, U and I. There was no “or else”. What if I wasn't able to finish this task – what would happen then? I felt this great threat that my mind would only focus on the letters that would spell out Auschwitz if they were to appear in a certain order. As I arrived at the letter “W”, my thought was – “I would get closer to Auschwitz this way” – both physically and emotionally.

I consider this to be a higher level of insanity that I myself am unable to understand. I just wanted to read a book for relaxation and a bit of escapism. As the situation was, I wasn't able visualize any of the words and sentences in the book. I didn't remember anything I had read in that book, so after the obsessive thoughts happened, I just quit reading all together for that day. It just felt so god awful.

So as you may have guessed: “World War 2” is one of the main subjects of how my OCD expresses itself. Any thought I had at some point could be linked to that subject. I can not think rationally or realistically about the subject of World War 2 anymore. If I were to continue thinking about it then I will for sure get on the wrong track of things.

The word “track” I just used, can be linked to a train rail track > Which can be indicating the train on its way to Auschwitz > The Holocaust... > … thinking about the entire reach of war > all those people who died as individuals > experiencing their suffering 1 by 1. It's a looping state of mind. Trigger and re-trigger.

It's just insane at times – OCD is no joke. After having experienced 2 psychotic episodes and depersonalization disorder (still ongoing) I seem to get one problem after another that I “have” to solve. No one is forcing me to solve any of these issues though. I do know that if I let this continue it can only lead to more suffering. Let's say I were to look up more information on the subject of WW2, I wouldn't be able to stop thinking about it. Every thought about it would linger until the point of no return. That's the delusion, there is no reward at all, no relief in sight if I keep following these orders.

About control and why this obsessive thinking keeps happening...

What I think is going on: “I don't want to be confronted with my own fears.”

A psychiatrist asked me earlier this year: “Are you afraid to feel?” My answer was yes – I am afraid to experience emotions in general. I don't trust any of my emotions since my second psychotic episode. While I was completely delusional then, there shouldn't be a reason why I would be that way now. I got medication that works versus the psychotic symptoms. I still have regrets there perhaps and fear that it may happen again. Regrets include: “I could have stopped this from happening”.

It has been a traumatic year... Unable to trust my own inner voice, my emotions, my ideas all because of inflicted trauma all those years ago.

All I can say in the end is: “This is not a permanent thing, my past experiences prove that.”
I've been through worse than this and always managed to return to who I am.)))



Successful exposure

The basic principles:

1. Test the expectation: Test if your negative expectation of what you are afraid of becomes reality and keep repeating this.

2. Assess the expectation:
a. Keep naming beforehand EXACTLY what you are afraid of (catastrophe).
b. Did this really end up happening?
c. How surprising is this for you?
d. What have you learned?


3. Add these together: Do different exposure exercises first separately from each other and then at the same time!

4. Confront yourself: Make sure that now and then that the [feared situation] will be recalled alongside the [anxiety] while you are practicing these exposure exercises.
For example:
Social anxiety - doing [shame] exercises
Producing a (self induced) [panic attack] while practicing this in a store.

5. Diversify: The exposure exercises
It’s also a good exercise to expose yourself in a more imaginary setting.
For example: Writing a short (film) script of your most [feared situation]

6. Experience feelings: Very important! Actually experience your feelings and [DO NOT TRY TO CHANGE THESE FEELINGS].

7. Throw the compulsions overboard: Stop the compulsive behavior entirely.
For example: Stop washing hands, avoiding situations, asking for reassurance.

8. Attention (span): Stay focussed on the exposure, do not find or seek out distractions!

9. Anxiety: The goal of successful exposure is testing the expectation, and NOT to [NOT experience the feelings of anxiety]. Don’t be afraid of anxiety and actually experience it.

10. Reminder: At the end of this [exposure exercise]: Keep thinking about successful exposure exercises and use something for this to keep reminding you of it, like a signal.

(more to come..., about 1 page more)
 

Aves

Well-Known Member
#2
Thank you so so so much for this! I’m currently awaiting exposure therapy for my OCD symptoms and also my food aversions. I always feel like there’s never really anyone I can relate to with this because I’ve never met anyone who does or experiences similar things to me until now.
Ive suffered with this since childhood and didn’t realise what it was until the beginning of this year when a psychiatrist told me it was OCD.
My obsessions and compulsive actions seem to be centred around "safety" or trying to stop bad things from happening. I also have a lot of obsessions with orderliness and tidiness. It’s a really debilitating thing and I’ve always found it so hard to explain it to people who don’t understand or have never experienced it.
This information is a great starting point for me whilst I’m waiting for my sessions so thank you for sharing this and it sounds like you are really strong and resilient for dealing with what you go through.
 

Aves

Well-Known Member
#3
Thank you so so so much for this! I’m currently awaiting exposure therapy for my OCD symptoms and also my food aversions. I always feel like there’s never really anyone I can relate to with this because I’ve never met anyone who does or experiences similar things to me until now.
Ive suffered with this since childhood and didn’t realise what it was until the beginning of this year when a psychiatrist told me it was OCD.
My obsessions and compulsive actions seem to be centred around "safety" or trying to stop bad things from happening. I also have a lot of obsessions with orderliness and tidiness. It’s a really debilitating thing and I’ve always found it so hard to explain it to people who don’t understand or have never experienced it.
This information is a great starting point for me whilst I’m waiting for my sessions so thank you for sharing this and it sounds like you are really strong and resilient for dealing with what you go through.
Sorry I meant to say "strong and resilient for dealing with what you went through". I’m assuming that things are better now.
 

Citizen Insane

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#4
The last page for now, there’s actually no more pages after this in my tiny booklet. :) The rest is a lot of repetition.

The example below is no longer mine (World War 2 subject), but translated from Dutch to English for an “imaginary” individual dealing with other subjects entirely.

------------

What is my expectation? :
Write this down as: “If … then …”
How believable is this to me on a scale of 0-100%?


[If I were to touch the door knob of the toilet/restroom without washing my hands, then I am going to get sick.] (I believe this to be true for: 85%)

Note: Describe the catastrophe without using “doubtful” language such as ‘possibly, perhaps, maybe’.

With what exercise am I going to test this expectation? :
Concretely: When, where, how, what can/can’t I do explicitly.


When: During lunch time at 1:00 PM, on a Saturday.
Where: The men’s toilet; in the same restaurant I go to once a week.
What: I will grab the door knob of the men’s toilet with my entire hand for 3 seconds - I will not wash my hands and will not use hand sanitizer/gel until I am home.
I will use my hands fully to open doors, use cutlery, while driving a car, etc.

Note: Throw compulsions overboard!

What actually happened with my expectations, stating it as facts only? :
Rate the anxiety on a scale of 0-10, where 0 = no anxiety at all and 10 = Extremely anxious.


[I held the door knob for 3 seconds. I felt my heartbeat going faster and started to sweat. I did not wash my hands until I got home and I did not get sick.] (Anxiety: 8)

Note: A good exercise actually creates (more) anxiety, tension in the body and mind - do not be afraid of this!

What did I learn about my expectations? :

[If I don’t wash my hands after touching a door knob, I will not get sick]
 

Citizen Insane

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#5
Super thanks @Aves - I remember being put on a waiting list too. Finally I got to do exposure therapy in the end with massive success.
Feel free to add to this thread anytime about anything that you want to share/ask! :)

It's indeed one of those disorders that makes you feel like you've lost control. It's not about the thinking from what I've learned.
[Yeah, I made the error that I could think my way out of OCD. "If I think more, calculate more... then surely I can overcome my anxiety, use willpower to overcome the thoughts..." *facepalm ]

Even with a disorder like PTSD (from what the psychologist told me) - it's not about the thoughts. They are just that, just thoughts.

Tagging @bobbob - check my post above this one :) it's finished for now, the writing.
 

Aves

Well-Known Member
#6
Super thanks @Aves - I remember being put on a waiting list too. Finally I got to do exposure therapy in the end with massive success.
Feel free to add to this thread anytime about anything that you want to share/ask! :)

It's indeed one of those disorders that makes you feel like you've lost control. It's not about the thinking from what I've learned.
[Yeah, I made the error that I could think my way out of OCD. "If I think more, calculate more... then surely I can overcome my anxiety, use willpower to overcome the thoughts..." *facepalm ]

Even with a disorder like PTSD (from what the psychologist told me) - it's not about the thoughts. They are just that, just thoughts.

Tagging @bobbob - check my post above this one :) it's finished for now, the writing.
Thank you, whilst I’m here I was just wondering if you or anyone else had tried any medication that are used for the treatment of OCD? I have been made aware of clomipramine and paroxetine (also known as anafranil and paxil) and I’m waiting to see my psychiatrist for a meds review to discuss the possibility of trying one of these. I was just wondering if anyone had tried them and if they actually do help with the intrusive thoughts?

I think one of the main things I will struggle with is trying to rate how believable something will be because even if something is so ridiculous and very unlikely to happen….e.g. I need to say a certain amount of particular phrases in a certain order to prevent an escaped animal from a zoo getting in to my house and mauling me to death, my intrusive thoughts will immediately tell me "well, weirder things have happened in the world, there’s always some kind of possibility that it will happen". Is there anything that helped you with those kind of thoughts (if you had them?)
 
Last edited:

Gonz

₲‹›Ŋʑ
#7
Thank you, whilst I’m here I was just wondering if you or anyone else had tried any medication that are used for the treatment of OCD? I have been made aware of clomipramine and paroxetine (also known as anafranil and paxil) and I’m waiting to see my psychiatrist for a meds review to discuss the possibility of trying one of these. I was just wondering if anyone had tried them and if they actually do help with the intrusive thoughts?
My wife had pretty severe OCD and, while it didn’t make it go away, Paxil did make it more manageable.
 

Citizen Insane

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#8
I think one of the main things I will struggle with is trying to rate how believable something will be because even if something is so ridiculous and very unlikely to happen….e.g. I need to say a certain amount of particular phrases in a certain order to prevent an escaped animal from a zoo getting in to my house and mauling me to death, my intrusive thoughts will immediately tell me "well, weirder things have happened in the world, there’s always some kind of possibility that it will happen". Is there anything that helped you with those kind of thoughts (if you had them?)
No meds vs OCD for me, I have tried Venlafaxine, Zoloft and a few others versus specifically anxiety - but had little to no effect.

Yeah I have had those types of intrusive thoughts too and the mind likes to be real smart about it too. *facepalm Like using a lie detector on yourself of some sorts and always finding the answer that leads to more anxiety, OCD. *hiding

Let's say with: "Saying a phrase in a specific manner to prevent a catastrophe from happening." - The mind to me doesn't tend to calculate much beyond that, besides creating the anxiety - which we don't want to experience (usually) for a long time.
As in, we say the phrase like our mind wants us to - but doesn't specifiy the exact time the catastrophe happens (calculations):

This happened to me at like New Years Eve for some reason for a few years:
"Oh I hope I don't have a bad, negative thought about anything at exactly 0:00 am when everyone (in the family) is cheerful and I should be cheerful too going into the New Year."

"Did I define what 0:00 am actually is? Oh what if it's 0 hours 0 minutes 0 seconds am but I'm a second too late when the bad, negative thought happens?" "Does that mean I did not have a negative thought at exactly 0:00 am?"

"I guess I'd better find a definition on what 0:00 am actually is, quickly let's grab an atomic clock laying around here casually so that I can check when exactly is 0:00 am and only then will I allow myself to hopefully not have negative thought going into the new year."

The calculations get a bit weird, somewhat more ridiculous over time as you can see. *dunnoFirst it tries to reason with it, then the mind turns into a lie detector, but its calculations are never leading to the outcome where I will just simply not have anxiety at all or a bad thought. (( An atomic clock is a clock that measures time by monitoring the resonant frequency of atoms ))

With the subject of World War 2 it was like... I couldn't convince myself at all that the subject wasn't important to me, to the world. "I'm living now, I am who I am now, all because World War 2 happened". That sort of line of thinking... It was hell at times in the mind.

I recovered thanks to exposure therapy in the end. I can even watch a World War 2 movie, without triggering the OCD in me. So I'll go to the movie Oppenheimer on 20 July, next week somewhere. This was not possible if I didn't do exposure therapy - the anxiety would be too much and would try to avoid it then at all costs.
So now I can grab popcorn *popcorn - that's what recovery is to me.

[Interested to hear your thoughts :) @Aves ]
 

Aves

Well-Known Member
#10
Thank you for sharing that @Gonz *thumbsup, yeah I guess I know it won’t miraculously make it go away but if something could help (even just a little bit) then that would be a good contributor to managing it better.
 

Aves

Well-Known Member
#12
No meds vs OCD for me, I have tried Venlafaxine, Zoloft and a few others versus specifically anxiety - but had little to no effect.

Yeah I have had those types of intrusive thoughts too and the mind likes to be real smart about it too. *facepalm Like using a lie detector on yourself of some sorts and always finding the answer that leads to more anxiety, OCD. *hiding

Let's say with: "Saying a phrase in a specific manner to prevent a catastrophe from happening." - The mind to me doesn't tend to calculate much beyond that, besides creating the anxiety - which we don't want to experience (usually) for a long time.
As in, we say the phrase like our mind wants us to - but doesn't specifiy the exact time the catastrophe happens (calculations):

This happened to me at like New Years Eve for some reason for a few years:
"Oh I hope I don't have a bad, negative thought about anything at exactly 0:00 am when everyone (in the family) is cheerful and I should be cheerful too going into the New Year."

"Did I define what 0:00 am actually is? Oh what if it's 0 hours 0 minutes 0 seconds am but I'm a second too late when the bad, negative thought happens?" "Does that mean I did not have a negative thought at exactly 0:00 am?"

"I guess I'd better find a definition on what 0:00 am actually is, quickly let's grab an atomic clock laying around here casually so that I can check when exactly is 0:00 am and only then will I allow myself to hopefully not have negative thought going into the new year."

The calculations get a bit weird, somewhat more ridiculous over time as you can see. *dunnoFirst it tries to reason with it, then the mind turns into a lie detector, but its calculations are never leading to the outcome where I will just simply not have anxiety at all or a bad thought. (( An atomic clock is a clock that measures time by monitoring the resonant frequency of atoms ))

With the subject of World War 2 it was like... I couldn't convince myself at all that the subject wasn't important to me, to the world. "I'm living now, I am who I am now, all because World War 2 happened". That sort of line of thinking... It was hell at times in the mind.

I recovered thanks to exposure therapy in the end. I can even watch a World War 2 movie, without triggering the OCD in me. So I'll go to the movie Oppenheimer on 20 July, next week somewhere. This was not possible if I didn't do exposure therapy - the anxiety would be too much and would try to avoid it then at all costs.
So now I can grab popcorn *popcorn - that's what recovery is to me.

[Interested to hear your thoughts :) @Aves ]
I’ve been on sertraline for a long time (with a brief period of taking venlafaxine in between but it triggered a manic episode so I was put back on sertraline). I found that when I started sertraline it did seem to really help with the anxiety and intrusive thoughts, however, after around 7 years of taking it I just don’t feel like it’s doing as much as I need it to anymore.

I can definitely relate with the "calculations", I have done (and currently still do) things like this a lot. I will try to problem solve my intrusive thought but then that takes me down a rabbit hole of more anxiety, especially if I try to look up information about it on the internet. I think that’s why a lot of my rituals have "rules" in order to protect them so that no matter what I try to do to disprove the intrusive thought, the ritual will always be the thing that prevents a catastrophe. I hope that makes sense, I don’t ever talk about these kind of things so I never know if I’m articulating them well enough.

So, for example, this is my "touchwood" ritual:

Rules:
  • Done every night (in my head) before I go to sleep
  • If not done correctly then I must repeat until it is
  • Whilst saying each statement, I must make one tap on my body with a final tap after the last statement.
  • Whilst saying the statements, I can tap anywhere on my body except for my head but it has to be on my body and no other surface.
  • If, after I’ve completed all the statements I have an intrusive thought about them being invalid then I can repeat them and this will make them valid
These are the statements:
  1. Touchwood as listed (tap)
  2. Touchwood as not listed (tap)
  3. Thank you (tap)
  4. Goodnight (tap)
  5. Touchwood (tap)
  6. Love you (final tap)
The “as listed” refers to everything I’ve ever said that I wanted preventing in my head when the ritual was in its infancy. I found it became too laborious to keep repeating every incident in my head so I used the “as listed” to cover everything I’ve ever thought of e.g. a flood, an airplane crashing in to the house, a fire, a burglary, a murderer breaking in, an earthquake, a volcano eruption, and the list goes on and on….. The “as not listed” refers to anything that I have not thought of and therefore will not be missed because that statement will “cover” that.

I have never really shared this properly with anyone before so I really appreciate having the space to talk about it. Just looking at it written down makes me feel ridiculous though.

I’m so happy that you are able to watch the world war 2 film you want to see, that is amazing progress! This makes me hopeful that the exposure therapy will help me with my limitations also 🤞
 

bobbob

SF Supporter
#13
Super thanks @Aves - I remember being put on a waiting list too. Finally I got to do exposure therapy in the end with massive success.
Feel free to add to this thread anytime about anything that you want to share/ask! :)

It's indeed one of those disorders that makes you feel like you've lost control. It's not about the thinking from what I've learned.
[Yeah, I made the error that I could think my way out of OCD. "If I think more, calculate more... then surely I can overcome my anxiety, use willpower to overcome the thoughts..." *facepalm ]

Even with a disorder like PTSD (from what the psychologist told me) - it's not about the thoughts. They are just that, just thoughts.

Tagging @bobbob - check my post above this one :) it's finished for now, the writing.
Great job Ken. Thanks so much. Should be really useful. Have to finish waht working on today but will have good look at tomorrow.
 

Fleury Dragon

Rawr 🐲
SF Supporter
#14
What: I will grab the door knob of the men’s toilet with my entire hand for 3 seconds - I will not wash my hands and will not use hand sanitizer/gel until I am home.
I will use my hands fully to open doors, use cutlery, while driving a car, etc.
Omg my anxiety just reading this.
My mind went to I need to get up wipe down door handles and clean my cutlery drawer.

Ken this information is really useful thanks. Will take a good look tomorrow. Tired tonight.
 

Fleury Dragon

Rawr 🐲
SF Supporter
#15
For me one of my worst ones is in the kitchen preparing food.
When preparing food vegetables must be done before anything else.
Dice onions - wash hands with soap
Peel and cut up carrots, rinse hands throughly.
Peel and cut up potatoes, rinse hands throughly.
Same for each vegetable.
Then I get to meat. If anything needs doing with the meat I really struggle to touch meat.

I also can't pick up meat to eat it, so chops, chicken breast with bone in. They all have to be taken off the bones with a knife and fork.

I'm working on it but it's very much a work in progress. A lot of my eating habits are.

I think I have a lot of trouble naming what exactly I'm afraid of. This makes it extremely hard to work on.
 

Aves

Well-Known Member
#16
For me one of my worst ones is in the kitchen preparing food.
When preparing food vegetables must be done before anything else.
Dice onions - wash hands with soap
Peel and cut up carrots, rinse hands throughly.
Peel and cut up potatoes, rinse hands throughly.
Same for each vegetable.
Then I get to meat. If anything needs doing with the meat I really struggle to touch meat.

I also can't pick up meat to eat it, so chops, chicken breast with bone in. They all have to be taken off the bones with a knife and fork.

I'm working on it but it's very much a work in progress. A lot of my eating habits are.

I think I have a lot of trouble naming what exactly I'm afraid of. This makes it extremely hard to work on.
I’m making an assumption here so I apologise if I’m wrong but do you think maybe your strict routine around food prep is because you’re afraid of being sick from food poisoning or something?
I’m also quite similar to you with meat on the bone but I think it’s more of a sensory thing for me, I hate food touching my face. I think that’s why I rip up my food with my fingers and then place it in my mouth (if I’m not using a knife and fork).
Good luck with working on your eating habits :) I’m trying to do that too
 

Sad Elf

Well-Known Member
#17
Thank you for making this post.

O CD rules my every waking thought. Have tried CBC and exposure, but could never manage the exposure, anxiety just to h igh.
 

Fleury Dragon

Rawr 🐲
SF Supporter
#18
I’m making an assumption here so I apologise if I’m wrong but do you think maybe your strict routine around food prep is because you’re afraid of being sick from food poisoning or something?
I’m also quite similar to you with meat on the bone but I think it’s more of a sensory thing for me, I hate food touching my face. I think that’s why I rip up my food with my fingers and then place it in my mouth (if I’m not using a knife and fork).
Good luck with working on your eating habits :) I’m trying to do that too
Was wondering about the food poisoning thing. But as I've never had food poisoning I don't think so.
I am also working on eating different food in the same mouthful. I used to have to make sure each food was separate and nothing touches.
Very busy this morning but will check later today.
 

Aves

Well-Known Member
#19
@Fleury Dragon It’s ok, please don’t ever feel pressured to reply to me, I honestly never expect a reply from anyone :)

I have this with certain foods too, I can tolerate some foods touching but not all. Im hoping I can overcome my fear of being around certain foods because at the moment I can’t even be around my son when he’s eating a ham sandwich (because of the smell and the way it looks and I think I avoid this because of the fear of feeling uncomfortable, feeling/ being sick or feeling distressed). I’m also hoping I can actually even make him one one day.
 

Fleury Dragon

Rawr 🐲
SF Supporter
#20
@Fleury Dragon It’s ok, please don’t ever feel pressured to reply to me, I honestly never expect a reply from anyone :)

I have this with certain foods too, I can tolerate some foods touching but not all. Im hoping I can overcome my fear of being around certain foods because at the moment I can’t even be around my son when he’s eating a ham sandwich (because of the smell and the way it looks and I think I avoid this because of the fear of feeling uncomfortable, feeling/ being sick or feeling distressed). I’m also hoping I can actually even make him one one day.
I hope you can join your son for that sandwich one day.
All of us here are a work in progress.
I hope the exposure therapy really helps you.
 

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