Disability after stroke

Not even sure what to say here. My life felt limited enough already; now I can hardly do anything.

I guess mostly I’m grieving the person I used to be.

”Things could always be worse” may be unhelpful, but it’s not untrue either.

Hi Gonz. I'm really happy to see you. Sorry that things have gotten so difficult. I see you're an early bird like me. I hope you stick around here for a while.

I'm sorry @Gonz .

I hope that, in time, and with some hopefully, "Good Help,"
that you'll be able to feel better about things
than the way you do (or as you do) now.

Easy for me to say, I realize & understand. . .
Take care,
-MisterBGone

@Gonz
I've thought and wondered how you were doing many times. I am very sorry to hear of the limitations and the difficulties. I hope you stay around, if it helps you that is, but I hope for that simply because you are part of this family. I speak for all of us I think, in saying we care for you very much.

Thinking of you...

Always wishing you best for yourself and your life.

I hear you, man...

It's like that tired old bourgeois platitude "That which doesn't kill you...."

Yeah yeah yeah 🙄

That which doesn't kill you still sucks ass and hurts like hell ...

Thanks for letting us know what is happening. If you ever want to do a PM, I’ll be happy to chat. I hope you have good medical care happening

“makes you wish it had.”

I can’t do things I used to, and things that used to be just a normal part of life are an event now.

I’m sorry, I don’t really know what to say, but I’m in a “woe is me” kind of mood over this.

I can’t cook anymore (I only have use of one hand, and it’s not my “good“ hand), and I’m trying to decide if I have enough energy to go and pick food up.

That seems stupid, I know, but everything is a matter of “is this worth the effort” nowadays.

Walking to and from the car is a lot of effort.

Driving is a lot of effort.

Walking to and from the restaurant is a lot of effort.

It’s the end of the month, so I’m short on money anyway.

But I’m hungry, and this would be my only meal today.

Pretty soon, I’ll be tired enough that the question will be answered for me.

There's nothing to be sorry about. When anyone loses anything significant it's natural to mourn.

If I win the lotto bro, imma hire you a cook.

Really sorry for you, Gonz. You have it worse than me, that's for sure. Don't you have friends in-person who can help you?

My family will come through if I ask. Well, my mom will. I’m not sure about my sisters and my dad’s too sick to ask anything of. Plus, they’re pretty old. And they’ve done so much getting me to this point, and now they have something new to worry about with my dad, so I’m hesitant to ask unless it’s a real emergency.

I’ll plan better tomorrow.

Some days, it feels like the list of things I can’t do anymore vastly outnumbers the things I can. Today is one of those days.

I hear you—it’s tough dealing with that shift. It’s okay to grieve what you’ve lost; that’s part of processing it. Be kind to yourself through this. Sometimes, small wins, even just getting through the day, can make a big difference in how you feel. You’re not alone in it.

Just sending hugs.

I know there is no way I can understand and there are some aspects that I truly do understand.

Have you got any stroke support groups near you?

Do you have any neuro rehab support (by us the stroke rehab is part of the neuro rehab team).

I was supposed to get about six months of rehab, but the occupational and physical therapists both stopped coming after 3. And I was supposed to get at least three months of speech therapy, but only got 4 meetings.

I’ve been only own with this since the beginning of April, no rehab, no support, nothing. I only started driving again very recently (it was over a year without leaving the house for anything but medical appts), so I’m going to try out a stroke support group that starts in January (they don’t meet in Dec, and it seemed pointless to just go their last meeting of the year). Honestly though, I’m just hoping to meet some people; I don’t think they can actually help.

That is honestly what it is for!!!

Re rehab. I'm guessing you cant chase it up.

Re support.

I used tiktok and never found support there. I recently opened a dedicated instagram account and I've begun to meet people through there. And I feel like I'll actually be able to hear people's experiences there. I wonder if that is something you could try.

I’m afraid I’ll just meet either people like myself, or people I can’t relate to. Seems weird to hope that bad things have happened to better people, you know?