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Empathy and Advice Welcomed Potentially Getting A New Dx

#1
So I already have hEDS and POTS. The past week or so I've had really bad stomach issues, and the past 4 days I haven't been able to keep food down. I'm in a lot of pain. No fever, so it's not a virus. My doctor suspects gastroparesis. I'm being referred to GI, but we probably won't get in before I go to school, which means I have to wait until either December or next summer. That sucks. I am now on a gp diet, which is low fat and low carb. That's bringing up eating disorder thoughts. So is the vomiting. If anyone has any suggestions for gastroparesis safe foods, please let me know. I'm stressed. My stomach hurts all the time. Nothing really helps.
 

Oizys Moros

Well-Known Member
#2
Hey PurpleWolf

I am not familiar with your condition but wanted to offer moral support and share suggestions from what I read about your condition.

Biggest take away was to keep a food journal and write down what you eat and how you feel afterwards. This will help you determine which foods make your symptoms worse.

Eat smaller meals and take short walks after eating.

If you’re worried about your calorie intake, maybe include smoothies in your diet to make sure you’re getting a variety of healthy options to your diet.

I wish you the best as you’re going through this uncomfortable and painful health concern.
 

seabird

meandering home
SF Supporter
#3
I just looked it up on Johns Hopkins medical site. It sounds scary, painful, and pretty terrible. I'm so sorry it's afflicting you. I used to get nauseous, unable to keep food down, and throw up. It was due to abuse in the past. The easiest foods I know of are unsweetened apple sauce, plain crackers, and plain nonfat yogurt. But. I'm not a doctor nor a nurse, and since they've delayed your appointment, I suggest you call them and ask for a list of recommended foods while you are waiting to be seen. Best health to you @PurpleWolf08. Please do what you can to avoid disordered eating, although it's understandable right now under the circumstances. (h) if they help
 
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#4
Hey PurpleWolf

I am not familiar with your condition but wanted to offer moral support and share suggestions from what I read about your condition.

Biggest take away was to keep a food journal and write down what you eat and how you feel afterwards. This will help you determine which foods make your symptoms worse.

Eat smaller meals and take short walks after eating.

If you’re worried about your calorie intake, maybe include smoothies in your diet to make sure you’re getting a variety of healthy options to your diet.

I wish you the best as you’re going through this uncomfortable and painful health concern.
I'm not allowed to keep a food journal because of my eating disorder. I have been trying smaller meals but it's hard to do them more frequently. I am worried about calories to a certain extent but I'm really not supposed to track them.
 
#5
I just looked it up on Johns Hopkins medical site. It sounds scary, painful, and pretty terrible. I'm so sorry it's afflicting you. I used to get nauseous, unable to keep food down, and throw up. It was due to abuse in the past. The easiest foods I know of are unsweetened apple sauce, plain crackers, and plain nonfat yogurt. But. I'm not a doctor nor a nurse, and since they've delayed your appointment, I suggest you call them and ask for a list of recommended foods while you are waiting to be seen. Best health to you @PurpleWolf08. Please do what you can to avoid disordered eating, although it's understandable right now under the circumstances. (h) if they help
Yea it's definitely not fun. I am able to keep down applesauce most of the time. I did yogurt with some granola for protein for breakfast today, so hoping that stays down. She basically just said low fat, low carb, limited raw veggies, and limited fiber.
 
#6
You might want to check out the info in this link:
Chinese Herbal Medicine and Acupuncture, World's Second Largest Medical System

There's a simple food treatment that might help (from a book of food cures). I'm taking a wild guess about the most helpful one based on what you've said, so of course discontinue if you don't get good results.

Cook together a bulb of garlic and three slices of ginger; mix with a teaspoon of honey and some water (not to be used in the event you have hot or dry eye disorders, mouth sores, or tongue ulcers).

I hope something can help
 
#8
that link is full of good information
I'm glad you liked it :)

Not the link that took me to the western cape university *facepalm
All the links there are pretty old now. I tried following the western cape university link, but it didn't take me anywhere at all, possibly because of settings on my privacy software. If you can identify a particular problem with the link, I can try to get a mod to edit it out.
 
#9
You might want to check out the info in this link:
Chinese Herbal Medicine and Acupuncture, World's Second Largest Medical System

There's a simple food treatment that might help (from a book of food cures). I'm taking a wild guess about the most helpful one based on what you've said, so of course discontinue if you don't get good results.

Cook together a bulb of garlic and three slices of ginger; mix with a teaspoon of honey and some water (not to be used in the event you have hot or dry eye disorders, mouth sores, or tongue ulcers).

I hope something can help
We don't have ginger in the house outside of my ginger and tumeric pills for nausea that have stopped working lately.
 
#10
We don't have ginger in the house outside of my ginger and tumeric pills for nausea that have stopped working lately.
It may take a little extra work to get some fresh ginger root, or any of the other ingredients from a grocery store, but I think it could be worth the effort. Would you have an obstacle in getting to the store, or someone buying this for you?

I'm sorry the pills have stopped working. Do you have any idea why they don't help anymore?
 
#11
I have pots and eds too. It's awful sometimes. When the food you eat is too fat or dense the gallbladder can't keep up leading to constant nausea that worsens with movement and to episodes of the most awful stomach pain that lasts for days. Generally the solution is switching to bland easily digestible food for a while. No spice, no frying, no fat, no fast food etc. It should get better over time then you can start introducing the normal food again
 
#12
It may take a little extra work to get some fresh ginger root, or any of the other ingredients from a grocery store, but I think it could be worth the effort. Would you have an obstacle in getting to the store, or someone buying this for you?

I'm sorry the pills have stopped working. Do you have any idea why they don't help anymore?
Yea I don't drive and my mom won't get that stuff.
 
#13
I have pots and eds too. It's awful sometimes. When the food you eat is too fat or dense the gallbladder can't keep up leading to constant nausea that worsens with movement and to episodes of the most awful stomach pain that lasts for days. Generally the solution is switching to bland easily digestible food for a while. No spice, no frying, no fat, no fast food etc. It should get better over time then you can start introducing the normal food again
Thanks!
 
#15
Ok.

How are you feeling now? Has anything changed?

If things are the same or worse, I could try to think of a way you could get those ingredients.
I've been keeping things down thankfully. Still pretty nauseous and in pain. But I've been able to push through most of it and eat most things so long as I stay low fat.
 

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